Murmuring voices
racing around me, vacuum engine growl,
white noise.
Words without meaning.
Sound without sense.
There you are.
Your mouth moves,
but I can not hear you
anymore.
(for Nikki)
.
I see joy.
See how you have expanded
until you’re exploding with all
that you’d held tightly
contained, buttoned up?
I see confidence.
See how what was timid
and tentative
now twinkles with the knowing
that you are amazing?
I am so proud
of who you’ve made,
you.
Just like that
you were back.
A flash.
Years had disappeared.
Your hair glistened in the light of the theatre,
our laughter and the crunch of popcorn on the air.
A flash.
Grief seeped through me,
sucking me back to the day they said
you were gone.
.
.
RIP Lloyd. 1964-1997 No one is truly dead until they are not remembered any more.
There’s a spark in the darkness,
a pin point of light,
that might just mean,
day is right ahead.
Maybe.
It’s not obvious
that the fix is helping.
The image is blurry and bulges strangely.
What faith is required when the cure
feels worse than the injury!
.
.
My vision therapy glasses have arrived. Yikes. Not sure how I’m going to manage with months of this! How can something that makes my head hurt so much actually help in the long term? Fingers crossed!
When it’s a bad day,
the pain is there with waking.
Constriction or stabbing,
nausea or aching;
it fills the head until there is nothing in the world
but the hopeless frustration,
that I will never be well again.
When it’s a bad day,
there are no conversations,
no outings or errands,
only holding the head,
taking another pill,
and praying tomorrow will be
a better day.
How hard the fight for gains,
wading through mire,
battling the blurred words,
crumbling beneath the crushing pressure.
Surrender.
Another day, perhaps a gain
of minutes of wellness.
Don’t over-do when the body is able
to accommodate desire to do more than
an errand or two before succumbing.
Daily battles.
How goes the war?
I cannot fathom a positive outcome any more.